Listen as Kevin discusses his role as caretaker and spouse. At the time of this chat, Kevin was bringing Monica home from the hospital. She had just had another Adrenal Insufficiency episode.

Kevin is also Monica's producer/ manager. He has been a tour manager and sound engineer in the music industry his whole life and has worked with many of the greats in the industry.

For the two years during Monica's diagnosis and surgeries he worked from home as a computer programmer so that he could take care of Monica.

Monica and Kevin were married two years ago, just before Monica's pituitary surgery. Monica and Kevin spent their honeymoon in Portland at OHSU doing one of her several "camp cushie" trips.

Keywords: Addison's, adrenal insufficiency, antibiotics, appendix, attention, autoimmune, biology, BLA, blood, Camp Cushie, caretaker, circus, clinic, control, cortisol, Cushing's, cyclic, Dr. William Ludlam, ENT, grief, infection, internet, love, manic, mental hospital, misdiagnosis, moustache, MRI, ordeal, PICC line, pituitary, pneumonia, pre-diagnosis, radiation, research, scared, sinus, socialized medicine, spiritual, spouse, strength, stress, stress dose, surgery, testing, triage, urine, violin, weight, wheelchair

Terry (Terry), April 17, 2008.

Long time pituitary Cushing's survivor. Terry had a pituitary surgery (in LA) in October of 2003 which did not cure her Cushing's Disease. Then, Dec 13th, 2003 she had her BLA in a Wisconsin hospital.

She also had an infection in her sphenoid sinus. It originated at the site of her pituitary surgery from October 2003. She had to be on a lot of antibiotics and narcotic pain relievers.

In Sept 2005 the surgeon removed infection from one area, make another area clear to allow for better drainage, checked her bone and found one area okay but took bone for culture from another area. Terry has had an infection requiring a post-op PICC line.

Keywords:  ACTH, antibiotics, auto immune, biopsy, BLA, blood pressure, bone, buffalo hump, chemotherapy, congestion, cortisol, Cushing's, Dr. Diana Maas, Dr. Hrayr Shahinian, Dr. Ted Friedman, endocrinologist, ENT, eyes, fatigue, Hashimotos, headache, hereditary, hospital, infection, kidneys, MRI, Muscle, muscles, narcotic, optic nerve, osteomyelitis, pain, partial empty sella, Percocet, PICC line, pituitary, RA, rheumatologist, rupture, saliva, sarcoidosis, sinus, Sjogren’s Syndrome, sphenoid, steroids, stretch marks, surgeon, survivor, synthroid, thyroid, tumor, vision, Wegner’s granuloma, weight

Interview with Steven Owens (sowens)

Steve was diagnosed with HyperBeta Adrenergic Syndrome in August, 2005.

Doctors thought he might have a pheo, now they're checking for ACC cancer.

Steven also has a newspaper article written about him.

Steve's daughter may also have Cushing's.

Read Steve's bio.
Read Steve's newspaper article.

Keywords: ACTH, adrenal, adrenal sampling, cancer, Cushing's, daughter, diurnal rhythm, Dr. Ian McCutcheon, Dr. Ted Friedman, Dr. William Ludlam, endocrine, endocrinologist, HyperBeta Adrenergic Syndrome, hyperplasia, IPSS, joint pain, MD Anderson, metastatic, MRI, pheo, pituitary, police, surgery, therapy, tumor, wean

Cushing's Awareness Day Special Chat

Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cushing's Awareness Day Special Chat

This chat had callers and some testimonials for the website and Mary O'Connor (MaryO).

Ideas were discussed for setting up non-profit status for this website


Keywords: ACTH, adrenal, awareness, cancer, carcinoid, computer, charity, cortisol, CT scan, dedication, director, doctors, Dr. Edward Laws, Dr. Harvey Cushing, Dr. Mary Lee Vance, endocrine, exploratory transphennoidal, fertility, flyers, fundraising, glands, Joanne Davis, library, lung, Mary O'Connor, MaryO, media, MRI, National Cushing's Awareness Day, National Institutes of Health, newsletters, newspaper, NIH, non-profit, nurses, Oklahoma, OctreoScan, patient, PayPal, petrossal sinus sampling, pictures, pituitary, PO box, post-op, pregnant, President George Bush, Reader's Digest, Senator James M. Inhofe, surgery, survivor, symptoms, tumor, TV commercial, website, XRays, yard sale

Jenn (StaceyJenn).

Jenn (StaceyJenn) has steroid-induced (Iatrogenic) Cushing's. She has taken steroids for secondary adrenal insufficiency. She has also been diagnosed with hypothyroidism, candidiasis, intestinal permeability and 22 latent food allergies.

Once diagnosed, she was on specially formulated hydrocortisone for 7 years as she was allergic to the fillers in the meds. Her doctor stopped practicing she and was transferred to his associate. The associate switched Jenn to medrol. Since then, Jenn has tried to wean off the steroids and has had further difficulties..

Read Jenn's bio
Listen to Jenn's Archived Interview from April 3, 2008

Keywords: 4-day rotation diet, accupuncture, adrenal, allergies, anti-fungal, asthma, blood pressure, calcium, candidiasis, chronic fatigue, corticosteroids, depression, dexamethosone, holistic, hydrocortisone, hypothyroidism, Iatrogenic, immune system, inhalers, intestinal permeability, joints, leaky gut, LEEP, Lyme Disease, medrol, mood swings, MSM, nasacort AQ, ovarian cyst, pain, predinsone, probiotic, pulmonary, SINGULAIR, specialist, steroids, stress, swelling, thin skin, thyroid, weight